AP2 LET’S GET PERSONAL (6-8 minutes)
ROAD TO RECOVERY
I’m sure many of us have read news stories about babies or young children going under the knife such as those born with a hole in the heart or conjoined twins having to be separated. Whenever I read or hear of such stories, I feel for the mothers. Because I myself have been through it.
It began in January 2007 when my younger son Jayden who was nine months old then came down with fever. I brought him to see the neighbourhood doctor Dr Leong who prescribed the usual fever syrup. His fever subsided after a few days but came back on and off a week later.
“Hmmm… this is not right,” my sister mused. “Something might be wrong. Better bring him for another check up,” she advised. My sister is four years my senior and a mother of two, so I definitely trusted her experience and instincts.
The next day I brought Jayden to see his paediatrician at Mount Alvernia Hospital. Dr Lee, a lady doctor and mother of three, suggested that we perform a urine test as fever could be a symptom of urinary tract infection, or UTI for short. The urine test results confirmed Jayden had UTI so he was put on antibiotics. Dr Lee mentioned that children with UTI can sometimes have other complications and recommended that further tests be done. I was not keen as firstly the tests are very expensive, secondly it can be rather invasive and thirdly, I was thinking, what only like 0.01 percent of children with UTI develop complications, how can we possibly be that unlucky?
A few weeks later I brought Jayden to see Dr Leong for an eye infection and mentioned his UTI problem. Dr Leong advised me to do further testing as every instance of UTI must be taken seriously.
That’s when I decided to do the test recommended by Dr Lee. It was called the micturating cysto-urethrogram test or MCUG for short. Jayden went for his first MCUG at MAH on 2 March 2007. First he was given sedation syrup as the test can only be carried out when the child is asleep. The procedure involves inserting a catheter through his penis into the bladder and then injecting a dye. X-rays are then taken to see if the dye moves up towards the kidney.
To our great horror, the MCUG test revealed that Jayden has vesico-ureteral reflux (VUR). This is a condition that causes urine to move backwards from the bladder, through one or both of the ureters up to the kidneys. Reflux is graded from 1 to 5 representing mild to moderate to severe cases. Unfortunately, Jayden had Grade V reflux and would need surgery to correct the problem causing the reflux, otherwise he would suffer kidney damage eventually.
When Dr Lee broke the news to us, I was devastated. What? My 9-month-old baby has to go under the knife? The thought was more than I could bear. Questions flooded my mind. Why? Why did this have to happen to Jayden? Was it something I had done wrong? Tears flowed down my cheeks as I grappled with the bad news.
My husband, the calm and rational one, meanwhile asked Dr Lee what we had to do next. She recommended a paediatric surgeon Dr Cheah from Gleneagles hospital who was experienced with urology cases. We met up with him and after viewing the x-rays and reports, Dr Cheah told us this was a congenital problem and had nothing to do with what we had or had not done. This assuaged my guilt somewhat. Then he went on to explain how the surgery for ureteral reimplantation would be carried out. It all sounded so complex to me! The most reassuring thing was that the surgery has a 95% chance of success.
With that, we arranged a date for surgery the following week and Jayden was admitted into MAH on 27 March 2007. It was the longest wait of our lives as my husband and I paced outside the operating theatre waiting for the operation to be over (like in the movies, you know). I believed I have never prayed more fervently than that moment in my life. When Jayden was wheeled out, his head was covered with a scarf and he looked completely dazed. I almost could not recognize him!
My poor baby had to be put on a drip and have a catheter attached to his wound to drain out the unwanted blood. It was a draining week staying in hospital with Jayden but each day when we saw progress in his health and well-being, our hearts rejoiced. Our family members and friends, even our church pastor came to visit us every day of the week. Many also expressed their concern and prayer support through SMSes. This show of love really uplifted us and kept us through the entire ordeal.
After the surgery, Jayden has to take antibiotics daily to prevent further urinary tract infection. He was scheduled for a post-op MCUG test 6 months later to determine if the reflux problem has been corrected. His second MCUG test again revealed Grade V reflux. We were stunned! Does that mean something went wrong during surgery? Even our paediatrician Dr Lee was puzzled.
We immediately made an appointment to see Jayden’s surgeon Dr Cheah. He explained that the muscles of the ureters needed time to become strong and given time, the reflux problem should resolve. Jayden was to continue with his antibiotics and go for another MCUG review in 4 months' time.
In February this year, Jayden was scheduled for his third MCUG test at Mount Alvernia Hospital (MAH). An anxious morning and $395 later, we received the good news - Jayden has no more reflux! Finally Jayden's problem of reflux has been resolved! We are so relieved and thankful. No more antibiotics, no more urine cultures, no more expensive MCUG tests! We have come to the end of the road of recovery.